Surgery Follow-Up

Today Raylee had a follow-up appointment with her surgeon, Dr. B. The appointment went well and Raylee's doing amazing! It is hard to explain how well she is doing because it is such a miracle and it's still difficult to comprehend everything. So much happened so quickly and it was difficult to keep up with the chaos of Chemo, keeping educated on cancer treatment, trying to make the best decisions, juggling being home for Jorja and at the hospital with Raylee, and keeping hope alive while scrapping for any strength I could find. All this choas has ended and now its hard to adjust to a more normal routine because I feel as if everything is still catching up to me. The reality of what we've gone through is still sinking in.

However, what's important is that Raylee is recovering so well! She has even gained 2 lbs! She has never weighed more than 25 lbs. When we last left the hospital she was at 24 lbs. Today she is at 26 lbs. I am so proud of her! She is sleeping better than she was. She still gets scared and has bad dreams but its manageable and the intensity of her fear has subsided. She seems to be playing even more than before her diagnosis, and doesn't whine like she use to. She is down right a happier child who enjoys herself. I too, am filled with so much relief I have a deep joy within myself that goes to my core! What a blessing! I am so thankful for these miricales and for good health. This wouldn't never have happened if it weren't for the Lord Jesus Christ. We know he carried Raylee through this experience and we pray he will continue to carry her through recovery and releasing all the stress this has caused to her and us.

We don't have another surgical follow-up until November and her surgeon said he would see Raylee during her oncology follow-up to make it easier for us. This means we have 1 month before our next follow-up and that one is with urology. An entire month without any hospital visits (of course unless Raylee gets a fever or ill) we are so excited, it has been a long time since we've even went a week without the hospital being part of our routine!