Raylee--Update with Urology

Raylee had a follow-up appointment with Urology today. When they called her name to go back to the patient rooms there were around 5 staff members standing outside of the waiting area. They were surprised to see Raylee so happy and playful. All of them said, 'She must be feeling better; she is so happy!' Raylee was happy and her mission while we were there was to play with all the toys possible. If you have been blessed enough never to have experienced Primary Children's hospital like we have, you must know that in every office, corner, little area, or just anywhere you can fit toys....there are toys. This place if full of every toy imagined. Since Raylee has experienced pretty much every floor and department (expect the burn unit and NICU) she knows when she is there she will be playing. She know calls Primary Children's "Her Hospital." She obviosuly thinks all the staff are there for her and her needs. The great thing about the staff there, they really do make her their focus and love her. They are wonderful as they express their excitement to see her and their happiness that she is feeling so well. They really do make it seems as if they came to work that day just for her--now that really is something remarkable!! Her urologist said she looks as if she has grown. This is true. Raylee has gained weight and has ground taller. Her face and arms are not that of a scrauny child who looks as if they are starving, but one who is filling out. Her cheeks use to be so chubby and would jiggle when she slept in her car seat during a trip in the car.

Prior to visiting the urologist Raylee had an ultrasound on her bladder and kidneys. The results couldn't have been better! Her bladder, larger than normal, is doing great and draining as it should be. Her kidneys look healthy and better than they did a month ago! This is all great news and such a blessing. We do not have to visit Urology for an entire year!! What a releif.

Whenever Raylee has an appointment I notice I experience a type of anxiety and fear that I cannot describe, but it is HELL. In November Raylee will have her first follow-up with Oncology as it will be her 3 month checkup. I am excited for them to see how great she is doing but fear and probably will always fear the CT Scan and all the tests that will be completed to ensure her cancer is not returning. This is my biggest fear. I never want her or my family to go through this again. This checkup will be done every 3 months. Every 3 months I feel as if we will be at God's mercy in a way I never thought I would be.