The Beagley's... & our fight with cancer!

Introducing Raylee and Jorja.....sisters! Raylee is our cancer baby and Jorja is her sister's keeper.

Saturday, September 3, 2011

Gold Ribbons!!

I hope I found the correct information. On-line I searched for the color ribbon of Neuroblastoma and it is GOLD. Gold is also the color ribbon to show awareness for Childhood Cancer.

I will make many Gold Ribbons to show awareness in honor of Raylee. If I am not able to give you one, and you want to make one to join us, please do so. You will be showing support and awareness for not only Neuroblastoma cancer patients but for all children experiencing pediatric cancer!!

Best Regards!! :)

Posted by The Beagley's at Saturday, September 03, 2011

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Neuroblastoma

Neuroblastoma is cancer of the sympathetic nervous system--a network of nerves that carries messages from the brain to all parts of the body. Primary neuroblastoma is a solid, malignant tumor that usually first appears as a mass in the abdomen (most often in the adrenal gland) or near the spine.

About 650 children are diagnosed with neuroblastoma each year in the United States. Two-thirds of children diagnosed with neuroblastom are 5 years old or younger.

(Educating The Child With Cancer: A Guide for Parents and Teachers, Second Edition, 2011, Edited by Ruth I Hoffman, MPH, page 5)

Bald girls are Princessess too! And bald girls are absolutely beautiful!

4.21.12

Raylee wears the princess dress her wish granters gave her every day.

4.14.12

Jorja with the stuffed penguin she won at Planet Play!

4.14.12

Raylee playing a dancing game at Planet Play.

4.14.12

Raylee with Matt & Natasha, her wish granters. Raylee wanted them to make silly faces for the pictures. These two are amazing! They just told Raylee her wish was granted to Disney World!

4.8.12

Happy Easter! The girls got new Easter dresses!

4.7.12

Look at the beautiful eggs we created!

3.31.12

Jorja & Raylee with the Easter Bunny! Raylee was scared of him!

3.31.12

Jorja & Raylee excited for the Easter Egg Hunt.

2.21.12

CT Scan--Raylee in the CT Scan.

2.17.12

Bone Scan--Raylee laying on the machine called "Hawkeye" made by GE and takes images of the bones.

2.11.12

Raylee with her Wish Granters, Matt and Natasha.

2.11.12

Raylee putting her wish in the cone in front of the waterfall in the Wishing Room.

2.11.12

Jorja & Raylee at The Wishing Place

1.18.12

All the princesses and princes at the Princess Tea Party. Can you see Jorja and Raylee sitting on the front row? They had so much fun!

1.18.12

At the Princess Tea Party with Make-A-Wish and Utah's Distinguished Young Women

1.14.12

Raylee's wishing key arrived in this box shaped like a castle.

12.24.11

Supporting Christmas pj's and ready for Santa.

12.11

What cuties supporting "Hope, Fight, Cure!"

12.11

Jorja sings at a local Winter Fest.

12.11

Jorja in her tap dancing costume prior to going on stage.

12.13.11

Raylee loves Santa as you can see in this picture. She ran to him and gave him a big hug!

12.09.11

Raylee with Santa, she's not sure what to think.

12.09.11

Jorja with Santa.

About Us

The Beagley's: We are not fans of social networks or blogs. As we live a private lifestyle....but under the current circumstances we feel it appropriate to create this blog. We are new at blogging and not very good at it....so please bare with us. We want to capture this experience in a journal type of way and blogging seems to be the easiest since we can add photos.

View my complete profile

The Native American Legend of the Butterfly

As a gift to His human children, the Great Spirit created butterflies. He took black from the maiden's hair, yellow from the warm sun, and blues from the lake and sky. Once he gathered the most beautiful of colors, He made them into butterflies.

If you want a special wish to come true, whispher your heart's desire to a butterfly. Since butterflies make no sound, they cannot tell the wish to anyone but Him. Being so colorful, the butterflies will easily be seen as they fly to heaven. The wish will be taken by the wings of love to heaven to be granted.

Blog Archive

► 2012 (15)
- ► April (2)
- ► March (2)
- ► February (5)
- ► January (6)

▼ 2011 (68)
- ► December (5)
- ► November (7)
- ► October (5)
- ▼ September (15)
- ► August (10)
- ► July (13)
- ► June (13)

11.22.11

Followup CT scan, Raylee was calm and relaxed during the imaging.

11.19.11

Check out Raylee's hair! It's fuzzy and super soft! We love it!

Fall 2011

I love thus picture!

10.22.11

Having a great time at Bear Lake!

10.21.11

Raylee & Jorja playing in the cabin at Bear Lake.

10.30.11

Book with 100s of questions about my pregnancy with Raylee and my diet, along with salivia kits for Raylee, Jerry, and I for DNA research all for the NENA study we are participating in to help find the cause of Neuroblastoma. This study is conducted by the University of North Carolina.

10.29.11

Dressed in costume for the annual Trunk-or-Treat at our local church.

Picking the right pumpkin at a local pumpkin patch.

This is the only scarf Raylee would wear and the only picture she would let me take with the scarf. She likes hats; I think she looks gorgeous either way but especially without anything covering her cute baldness.

10.03.11

Raylee!

10.03.11

Raylee modeling the Tinkerbell hat she received from 'Hats Off for Cancer.'

10.8.11

Raylee's collection of hospital bands received for each ER visit or hispital admission. These give the perspective of how much we were at ghe hospital from the end of May to mid-August.

9.30.11

Having fun with the new K-9 police pup at the StarBucks barbeque.

9.24.11

Raylee and Leyla playing at the Wasatch Adventure.

9.24.11

Our friend Leyla, Raylee, and Jorja with Miss Arizona at the Wasatch Adventure.

9.24.11

HopeKids Hero poster at the Wasatch Adventure. Can you find Raylee's picture?

9.22.11

Elliot the pet therapy dog was at the barbeque...we love him!

9.22.11

Car Show at the Biker's for Christ barbeque.

9.17.11

Raylee wants her hair to grow back pink so Grandma Patty sprayed the girl's hair pink. When I washed Raylee's hair and the pink came out she cried and asked where it went? :)

9.14.11

Jorja loves the giant teddybear! She always wanted one!

9.14.11

This picture shows the quilt, plaque, and giant teddy bear for Jorja.

9.14.11

Raylee with the doll & quilt given to her by my friends/co-workers. She was so happy!

9.10.11

Raylee on a carousel during a HoeKids event.

The girls at an event with HopeKids.

9.5.11

Wear a gold ribbon for Raylee during September, Childhood Cancer Awareness month.

9.4.11

Can you see her hair growing back? The super cute fuzz!

8.25.11

Our happy Raylee is back!

8.7.11

Raylee

8.9.11

Raylee with her amazing oncologist Dr. S! She is a wonderful doctor and we are very appeciative of her especially because she helped us understand everything we needed to know about Raylee's cancer.

8.5.11

Jorja

8.5.11

Jorja and Raylee are so happy to be home together!

8.5.11

Raylee missed Parker :)

8.5.11

She is so happy to leave the hospital. She told the nurse, "I'm outta her, okay? I'm done."

8.4.11

Raylee finally smiled.

8.3.11

Raylee is really weak due to not eating or drinking anything, which resulted in having a feeding tube. This also resulted in an unexpected extended stay in the hospital.

7.31.11

Raylee, Jerry, and Jorja going for a walk.

7.30.11

Raylee is happy to see her sister!

7.30.11

Raylee with her amazing surgeon who we adore! He is fabulous! He really cares for Raylee and has checked on her everyday. He thinks she is super sweet and brought his kids to meet her.

7.29.11

Jorja at the Planetarium with HopeKids!

7.28.11

Raylee with Daisy, a pet therapy dog who came to visit her.

7.27.11

Raylee in Intensive Care.

7.27.11

Raylee in Pediatric Intensive Care Unit. In her left hand is an IV and an Arterial IV-which goes in the artery.

7.27.11

Raylee in Pediatric Intensive Care Unit. She was hooked up to a lot of medical monitors.

7.27.11

Raylee and her mommy early in the morning during pre-op.

7.27.11

These bracelets were made by my friends where I work. They were made to support Raylee and worn on the day of her surgery!

7.26.11

Prior to surgery the oncologists and surgeons said the tumor was the size of a grapefruit. Here is a grapefruit compared to Raylee. However, after the surgery her surgeon said the tumor was more like the size of a softball. A softball is just a little bit smaller than the grapefruit Raylee is holding in this picture.

7.25.11

Raylee modeling her very own 'Little Mermaid' hospital gown made by one of my friends. Raylee will wear the gown the day of her surgery......she loves it! Jorja got one too!

7.19.11

Raylee having CT scan.

7.19.11

Raylee in the waiting room in medical imaging waiting for the CT scan.

Jorja modeling the pin for Raylee made and worn by the primary.

Bracelets worn to support Raylee by the young women and leaders.

Pins made for Raylee worn by our primary kids and leaders.

A group of our young men & leaders who shave their heads for Raylee.

7.12.11

This is the IV bag full of platelets; it looks like orange juice. Raylee said she had some orange juice :) she calls blood 'punch.'

7.12.11

Raylee during Platelet Transfusion #1, eating chocolate pudding.

7.6.11

Raylee during blood transfusion #1. She was really tired and slept most the day.

7.6.11

Receiving the blood transfusion. The nurse covered the IV bag and tubes full of blood with blankets so I didnt see them to prevent me from getting nauseous. I felt like a whimp because they had to cover it. :(

7.4.11

Happy 4th-Raylee

7.4.11

Happy 4th--Jorja

7.1.11

Raylee having a Happy Friday!

6.28.11

Raylee and Jorja prior to Chemo Round 2

6.28.11

Raylee napping before Chemo Round 2. When she naps she looks really young like an infant.

6.27.11

Raylee received a 'Locks of Love' bear from her aunt Tressie.

Raylee 6.25.11

What a cutie!

6.23.11

Cute bald kid.....kick'n cancer's butt!

6.23.11

Raylee loves the cowgirl hat grandma and grandpa gave her after her hair was shaved. When she wears it she yodels like the character Jessie from 'Toy Story.'

6.7.11

Raylee and Jorja prior to Chemo Round 1.

Raylee 6.2.11

Raylee after the MIBG scan.

5.24.11

Raylee recovering after the biopsy.

Followers

Raylee receiving a huge care package for her and Jorja from my friends/co-workers. This gift package was so big and full of everything imaginable that it took 2 people to carry!